Tag: Church


Good vibrations….?

December 24, 2017

Nat

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Rollercoaster of CRPS

Nat has has some really good days lately, riding over to his Aunt and Uncle’s place, walking their dog, playing with his cousins, and helping his Uncle make things in his shed. This morning started no different than any other morning. He takes a while to wake, but that’s pretty much the same as every other 15 year old boy!

This morning, we went to church as we do on just about every Sunday morning.

Things started changing as the band geared up to play. The sound had been set in such a way that the bass guitar was louder than usual, or the other musicians were quieter. Nat’s legs are still quite sensitive and he could feel the vibrations of the bass guitar through the floor. It didn’t seem to matter that we were sitting on the other side of the church.

These vibrations caused a minor pain flare in Nat’s legs. He ended up using all the tools in his toolbox to make it through the service. This included having some chewing gum (chewing helps keep his mind off pain), and going for a walk around the block.

He did join in the service, but left the church when it was time to sing the final songs. Standing outside the church, he said he could still feel the bass through his feet!

This afternoon has been quiet. Nat is digging into all the tools in his toolbox in an effort to keep the pain down and prepare him for Christmas tomorrow.

Life with CRPS is certainly a roller-coaster. The main difference is that often you don’t see the ups and downs coming!

We are crossing fingers and toes in the hope that Nat’s pain will settle down and he will have a good day tomorrow.


Hospital break out!

July 9, 2017

Nat

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We were able to take Nat out of the hospital this morning to go to church. This is the first time he’s been out of the hospital since he was admitted. He still has the band on his wrist, but he’s been hiding it with his jumper.

He was very excited about being able to leave the hospital for the morning. The only thing we had to make sure of was he would be back by 2pm for his medication.

It was interesting getting him into the car as he wasn’t able to put much weight on his legs, but we got him in and drove the 20 minutes to church.

When we arrived, Zac had to run in to open the door with the ramp so we could get inside. Nat was warmly welcomed by everyone and he settled on the couch up the back of the church. Some friends decided that wasn’t good enough, so they moved the couch to the side aisle, close to the heater so he could be a bit warmer!

Nat enjoyed the service and being around friends for a while. All too soon it was time to head home, but not before doing a detour to visit Speedcube.com.au. Nat was in need of a new cube to help pass the time in hospital.

By the time we’d finished, Nat was very sore and just wanted to get back to the hospital. We stopped off at McDonald’s for some lunch, though we just got drive through so we could get back sooner. He was in too much pain to eat, but enjoyed the break from hospital food when he got back.

It was lovely spending some time together as a family, as short as it was, and it was hard to see Nat in so much pain on the drive back to the hospital, but it was worth it.