Nat is 16 today! I can hardly believe it.
The last few years, he’s had his birthday on camp. This year, however, he came home from camp on his birthday. For morning tea they made him a huge chocolate cake complete with plenty of chocolates on top. Unfortunately, he didn’t have a photo of it, but it sounded delicious.
Tonight, all his cousins came around, along with one of his uncles and two of his aunts and we had a barbecue dinner to celebrate, complete with a couple of cheesecakes for his birthday cake. Zac was disgusted that there were 17, not 16, candles on the cake! I think Nat was more worried that they were black and white candles recycled from his great-grandfather’s birthday cake (his great-grandfather is a Collingwood supporter, Nat supports the AFL!).
Now I’m the mother of a 16 year old! It’s been an interesting journey so far, and I look forward to whatever the future holds.
In the short term, Nat wants to get his L plates so he can learn to drive! We have checked with the hospital and he’s cleared there, so all that’s needed is for him to learn the rules and pass his test! Watch this space.
Today is my 40th birthday! I’ve been looking forward to it… I’m excited about my 40s.
This morning, I slept in a bit, and had to rush to get ready for work! Zac gave me the first part of his gift – a Bertie Beetle showbag he’d bought for me at the Royal Melbourne Show last week! It’s always been a favourite of mine, the cheapest show bag, and the only time I eat Bertie Beetles.
My parents also came up to say Happy Birthday. Nat needed prompting and eventually wished me a happy birthday – after telling me he needed to sleep and that it was too early!
The bright side was Nat had a good sleep last night and his pain was down this morning. While his feet were still sore, doing his foot pumps was easier this morning.
After a few hours at work, I came home as Nat had some friends over to play computer games. They set up downstairs and had a lovely time, stopping only for pizza lunch.
A lovely friend from church surprised me with some gorgeous flowers, and I was able to spend some time sending copies of my new book for review and start on a new story.
We had take away Indian food for dinner as Nat was in too much pain to go out for dinner. We still had a nice dinner and had leftover birthday cake from yesterday for dessert. I was quite glad we didn’t go out to dinner as Nat’s feet were looking quite colourful by the end of dinner. They hadn’t been down all that long and his toes were quite swollen. When I’d checked them earlier this afternoon, he could feel that I was touching his toes, but he couldn’t work out which toe I was touching!
Thankfully, we are seeing the pain doctor tomorrow. Maybe he can give us some advice, or even just some reassurance that we are doing all the right things…
Tomorrow is my 40th birthday! If I’m honest, I’ve been looking forward to my 40’s. I’m sure they’ll be the best decade of my life so far… at least, that’s what I’m hoping.
The celebrations kicked off today with cake at work, shared with a friend and work colleague who is getting married this weekend.
As a bonus, there was enough cake left over for dessert this evening!
The biggest worry right now is Nat’s feet. The pain has steadily been getting worse over the last few days. He’s had orange spots on his feet, even when they were up on the couch, which is never a good sign. He hasn’t been able to put weight on his feet, and his toes are especially sore. They were numb yesterday and he didn’t get any sleep last night.
I am hoping the pain settles down soon. We have an appointment with the pain doctor on Wednesday and I’m hoping that he can hang on until then. If things get really bad, we can always head back to the hospital, though I don’t think either of us feels like spending my birthday in the hospital. Plus, Nat’s invited some friends around to play computer games tomorrow and he really wants to be able to do that. If the pain is too bad, then he may not be able to sit up and play with them!
We are all hoping for a pain reduced night tonight so that we can all get a good night sleep and wake up ready to celebrate my 40th birthday tomorrow.
Yesterday, Zac had a lovely day at the Royal Melbourne Show with his grandparents. The last time he went was about five years ago, before he got ME/CFS. Even last year, this wouldn’t have been something we would have considered!
He cuddled a chicken, milked a cow, drove a dodgem car with Opa, and spent his own money on show bags. He had a lovely day. There were a couple of moments when he didn’t feel all that well, but his grandparents reminded him about his snacks and drinks, and that helped him to last the day.
The flip side to going out and having a lovely day is that his energy levels have been very low today.
We went to my nephews first birthday party in a local park. Almost immediately, he started to struggle. It was a pleasant day, however there was a cool breeze. When Zac has a crash, his temperature regulation goes haywire and he was sitting there shivering. We wrapped him in the picnic blankets and put him in the sun, but he still wasn’t coping too well.
At the same time, Nat was struggling. He was sitting with his feet down, but it was the wind that was making things hard. He didn’t want to eat anything, which is one of the early signs that he’s not coping. My mum tried wrapping blankets around as a wind break, but that didn’t work too well.
Nat only lasted an hour before we really had to go home – and before birthday cake!
By the time we got home, his feet looked like this:
The orange spots are a sure sign that the pain has increased. When this happens, we need to wait it out. He has been doing some ankle pumps to keep his feet moving, and did use the walking frame to get to the toilet, but that was really, really hard for him.
Zac has sparked up after having a rest, but he’s still pretty tired. We’re all a bit disappointed that we missed out on all the fun at the park.
Happy 1st birthday to Lewis for last Monday, Aunty Jenny for today, and me for next Tuesday.