Good vibrations….?

December 24, 2017


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Rollercoaster of CRPS

Nat has has some really good days lately, riding over to his Aunt and Uncle’s place, walking their dog, playing with his cousins, and helping his Uncle make things in his shed. This morning started no different than any other morning. He takes a while to wake, but that’s pretty much the same as every other 15 year old boy!

This morning, we went to church as we do on just about every Sunday morning.

Things started changing as the band geared up to play. The sound had been set in such a way that the bass guitar was louder than usual, or the other musicians were quieter. Nat’s legs are still quite sensitive and he could feel the vibrations of the bass guitar through the floor. It didn’t seem to matter that we were sitting on the other side of the church.

These vibrations caused a minor pain flare in Nat’s legs. He ended up using all the tools in his toolbox to make it through the service. This included having some chewing gum (chewing helps keep his mind off pain), and going for a walk around the block.

He did join in the service, but left the church when it was time to sing the final songs. Standing outside the church, he said he could still feel the bass through his feet!

This afternoon has been quiet. Nat is digging into all the tools in his toolbox in an effort to keep the pain down and prepare him for Christmas tomorrow.

Life with CRPS is certainly a roller-coaster. The main difference is that often you don’t see the ups and downs coming!

We are crossing fingers and toes in the hope that Nat’s pain will settle down and he will have a good day tomorrow.