Month: November 2016


End of CFS Rehab

November 4, 2016

Zac

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Tram station outside the hospital

Zac had his final session with the CFS Rehab team at the Royal Children’s Hospital today. The team are all really happy with his progress and I’m so proud of him.

Since the program started, life has changed a lot.

Before the program, he was doing school by distance education. Now he’s at school for half days.

Before the program, we didn’t know how to manage his fatigue. Now we have more tools in our toolbox and a better idea of how to live a life.

Before the program, we would err on the side of caution and not do much in case Zac crashed. Now we are able to plan activities and have fun as a family.

Before the program, we were all at sea. Now we have more idea of what CFS is and how to live with it.

It’s been a long road, and there are still many ups and downs, but we’re getting there. Since Zac started on this program, we certainly feel much better equipped to live with this condition, and it doesn’t feel quite so much like we’re doing this on our own.

Zac will still have regular appointments with the doctor to keep tabs on his progress, however the rehab program is now finished.